My 2 weeks of recovery…

I woke up the following day after surgery feeling like a train wreck. I wasn’t in extreme pain but I was exhausted and still drowsy from my medications. I was actually able to get around pretty well. I’d say the only surprise I had that day was the blue urine I had as a result of a dye called Lymphazurin used during my surgery to help locate my sentinel node. I was a smurf for the day, no problem! ๐Ÿ™‚

All was going well until a few days after surgery when I finally made the decision to stop my pain medications. I couldn’t take it anymore. They were making me nauseas, constipated, bloated and I was gaining a substantial amount of weight. Within just a few days I had gained about 10lbs. I felt horrible and it had nothing to do with vanity. I just felt like I was accumulating everything and releasing nothing resulting in my body feeling like a toxic dump.ย It took several days before my body began to regulate itself and I was beginning to feel uncomfortable but, the pain I felt from not taking my medications was well worth feeling more like myself again.

My surgeon called me within the first week to see how I was feeling and to report his findings. I explained what I had been going through and he reassured me it was normal. Till this day I honestly couldn’t have asked for a better surgeon. He kept me informed of his thoughts every step of the way and it made me feel like I too had a say in what was happening. That’s a big deal to anyone let alone an ex control freak like myself. I wanted to be involved in everything no matter how big or small it seemed to anyone else. It was my body and I had the right to know what was going to happen to it.

He made mentioned that after the biopsy of my sentinel node they observed the cells carefully to see if the cancer had spread and, to his surprise he found 1 lymph node positive for a single cluster (5-6 cells) of individual tumor cells. Since it was such a small count he removed only a few lymph nodes but needless to say it was something to consider when I sat down with my oncologist to discuss my treatment plan.

You can only imagine how I translated this in my head. “Why is he so calm? I was told the cancer was incapsulated. If it was, how did any of it, even the tiniest bit, spread to the lymph nodes? Wouldn’t it have been better to just remove them all?” I was scared and no matter how much I tried, I couldn’t understand how that wasn’t a big deal. My surgeon reassured me and helped put me at ease.

I later received a separate phone call with the news about my PET/CT scan. There was an area of concern in my right pelvis. “What?” I began to have flashbacks of the times my gynecologist suggested I have an ultrasound to keep an eye on the cysts I was developing. Prior to surgery we had talked about the correlation between breast cancer and cervical or ovarian cancer but, I wanted to believe that since I found my breast cancer on time, it wouldn’t have had the chance to spread elsewhere. However, regardless of what I thought, we had to be certain so I was scheduled for a CT scan immediately.

My family and closes friends were concerned. I hadn’t even finished recovering from my surgery and they weren’t sure if I could handle this or even be up to doing more tests. In all honesty, I wasn’t. I was afraid to know that I could have been wrong and that the cancer may have spread. That would have been the second thing I let go by. How could I live with myself? Than again, how could I live with myself now delaying something so important? If indeed there was cancer, waiting wasn’t going to change that and could potentially make it worse.

I wasn’t cleared to drive yet and since my mom and I worked in the same office we weren’t able to be off at the same time. This again was the perfect example of the importance of a solid support system. Without any hesitation my bosses wife told me she would be picking me up and accompanying me to my appointment. In fact, when the day came, she even sat in the room with me while I had my scan done to make sure they had me in a comfortable position and that I didn’t feel alone.

Between the many beautiful cards filled with words of love, prayer and encouragement, the beautiful bouquets of flowers and edible arrangements and the occasional house visits, I had all of the support anyone could ever wish for. There was still a long journey ahead but I wasn’t going to be alone. I was reminded of that again within those few weeks of recovery and it gave me the strength I needed to continue…

Stay tuned,
Elizabeth ๐Ÿ™‚

*** Note to reader ***

Be sure to check out my photos tab to see pictures of me taken during my recover. ๐Ÿ™‚

The importance of a good support system…

I thought I could handle it all. In fact, my main focus at the beginning of my journey was how I was going to balance having cancer with keeping a positive outlook around my loved ones. I didn’t want anyone to see me cry or to think I was weak and feeling bad for myself. It’s not that I didn’t accept this gift and find in it the opportunity for greatness. It was just that even though my mind was able to understand that logic, there was also the other side of me that was to proud to admit that I was in pain, confused, fearful and uncertain.

So many of the answers I had received still felt so vague. I didn’t know what my life would be like after surgery and what my treatments would consist of. There were still talks of other tests and possibly more surgeries after the one I was already scheduled for and it just made my mind wander. I researched as mush as I could and listed out the many scenarios but it got to a point that it all just consumed me. It was all I could think of and the things that once kept me sane were no longer apart of my daily routine. I was no longer running or training for any event. I thought to myself, “what’s the point of training when I don’t know what’s going to happen next?”

That was the second worse thing I could have done. Not only was I isolating myself while trying to build this image of strength, I was also keeping myself from doing the things I loved and that kept my mind and body balanced. With only a few days left before my surgery, I realized that I needed to embrace my support system. I had so many people who loved me and wanted to help in anyway they could. I needed to let them in and also learn to let go of that control I was still longing for. That’s one of the most important things my journey has taught me.

It’s okay to accept help from others. It is in no way a sign of weakness. Instead, it taught me to be humble. You can’t always go around life thinking you can handle everything it throws your way. Sometimes it requires assistance from those around you to get the job done. I reached out to my mom and partner for the most help but humbly accepted help from others as well.

From day one I kept everything in order. I had a copy of every test result, office visit, payment made, everything! I kept it all organized in a binder and to be honest, that too kept me sane. All of that organization was me still having a little control over a situation I had no control of. This was also a huge help to those closes to me. They would have all my contacts and appointments at the palm of their hand and the ability to answer any questions necessary without my needing to be there. I was letting them in and you know what? It felt amazing to know I could do that. To know I had such a strong support system backing me up and with me every step of the way…

Stay tuned,
Elizabeth ๐Ÿ™‚

See you Monday for surgery! ๐Ÿ™‚

 

It’s really happening…

The following day on my way to my PET/CT scan I was thinking about all of the things I needed to address prior to my being off for surgery. I would be away from work for 2 weeks and home bound for at least the first week. Then, moments before arriving at my destination I had a flashback of what had occurred only weeks before. It all sunk in within those few moments. I had put in my notice at work and had planned to leave at the end of December. We had even found a replacement. How could I move away from my doctors and what was I going to do about my insurance? More than ever I needed to be certain I was insured at all times. There was already so much on my plate. I didn’t need something else to worry about.

I called my mom to express my concerns in hopes of some helpful advice but instead I got something better. It was like my angels were telling me to relax and that everything was going to be okay. My boss of 11+ years and his wife had already spoken to my mother. They told her that my job was secure until I was finished with my journey. I couldn’t believe my ears!! The support I had all around was overwhelming. I never realized how much I meant to so many. They had even spoken to the young lady we found for my position and she was willing to wait and sending me prayers for a speedy recovery. It was like a ton of bricks were lifted off my shoulders and once again I was able to focus.

I entered the facility and signed in. It was early and it didn’t seem very busy. After a short wait the technician whisked me away into another one of those fancy closets with the designer blouses I had mentioned in my prior posts. I was becoming more and more familiar with this luxurious lifestyle. When I finished changing I was brought into a room filled with several recliner like chairs divided by privacy partitions. As I sat in the back room waiting for the technician to inject me with my radiation cocktail, I watched as the other patients were directed to their seats. It was starting to get full but, my cocktail did eventually arrive and it was administered intravenously.ย After an hour of relaxing and going through the many possible outcomes of my results the scan was performed and I was on my way to my pre-op appointment.

At the hospital, I went from one waiting room to the next before sitting down with the nurse to go over my preoperative instructions. She drew some more blood and asked a number of questions. Then she handed me an antimicrobial body wash. She explained I had to use this on the day of surgery and the day prior. It didn’t smell pretty but I smiled, thanked her and was on my way. I hadn’t eaten all morning and I was starving. I headed to a near by bagel place and there I spent a little time organizing all of my thoughts and paperwork.

This was really happening. In just a few days I was going to be having surgery. Most importantly, I had to face another challenge. I had to tell the people closes to me. I chose since the beginning to tell no one until I knew for certain what my diagnoses was but, then everything started to unfold so quickly. I could no longer hide it from them. How could I explain my 2 weeks of inactivity? I was always off doing a race or training and I had only told a hand full of people prior to my diagnoses. It wasn’t easy for me to announce I had cancer. Who wants to be the one to say, ” Hi there, I know you have a lot going on but hey, I have cancer.” I didn’t want to be a Debbie downer. I liked delivering good news, not dropping that kind of load on someone. Regardless, now was the time to start explaining what was happening to those around me.

It was hard to talk about it because the approach many had was, “Maybe they are wrong, these kinds of things have happened to others before”. I didn’t want people to be sad or feel bad for me but at the same time I didn’t want to be filled with false hope. I knew my doctors weren’t wrong. I also knew what my body was telling me. It was an emotional roller coaster but in the end it created an even larger support system and that was a true blessing. I just had to learn that everyone’s reactions were different and I couldn’t take it personal.ย Some were upset they didn’t know sooner, others were there supporting me every step of the way with prayers and words of encouragement.

All in all I had an overwhelmingly positive response. It felt great to start sharing my journey and having so many people to talk to about it. It kept me strong and I am eternally grateful for those amazing people in my life. Near and far, you are all apart of my journey and I couldn’t have made it this far without you…

Stay tuned,
Elizabeth ๐Ÿ™‚