To my newly diagnosed reader…

Dear Reader,

Being diagnosed with Cancer is not an easy thing to swallow, and if I could share some words of wisdom I would say, “let yourself be”.

Of course, there are many other important things like taking notes, asking questions and informing yourself of other treatment options available to you. You would be amazed at whats out there. However, please keep in mind that not every treatment option is the right one for you, which is why I can’t stress enough the importance of doing your own research.

Still, for me the hardest part was allowing myself the freedom to openly feel the way I was feeling in that moment without judging myself.

I would understand if your first thought was that this isn’t really relevant to your care however, it’s actually a key component. Not honoring my feelings made me realize the unrealistic goal I had set for myself. I couldn’t accept the urge to cry, feel sorry for myself or even feel anger because in my mind these were signs of weakness and/or being ungrateful. This emotional roller coaster eventually made me feel physically ill.

The truth is, these are all natural emotions, and you having them doesn’t make you less appreciative for the good things you have in your life. I say this because we’ve all heard the good old saying, “it could be worse”. I do feel it’s true and I use the phrase regularly, only now however, I do a better job of acknowledging that I am also human and am allowed to have a bad day here and there, as long as I also do my best to acknowledge the good that has come from my journey with breast cancer.

My “gift with a pink ribbon” taught me that I am stronger than I had ever imagined. I also believe that this may be gods way of using one of his social butterflies to help others by sharing my story and I am humbled to play such a vital role in bringing awareness.

So with that said, I leave you with this…

Free yourself from your emotional binds and know that it’s okay to feel what you are feeling in this very moment. It will take some time to figure it all out and that’s okay. The important thing is that you embrace each moment as an opportunity to love yourself and who you are in that moment, all judgement aside. This will help you cope with the new challenges that come your way, knowing that you have yourself on your side of the cancer battlefield, instead of working against you.

With all my love,

Elizabeth  P 🙂 ❤

P.S. Sending a special thanks to Cure Forward for encouraging every survivor to share their cancer journey with new patients.

So, what now?

So now that I’ve shared my story, the biggest question lingering in my head is “what now? What else do I write about?” Sure I’ve had new struggles, but I no longer know whats important and useful to share. To be honest, I’m still trying to figure this whole thing out myself. Many people think that once you’ve gotten over “the worse part of the journey”, things are smooth sailing from there on out. Here’s the thing though, “the worst part” is different for us all.

Let’s take me for example. I sailed right through my surgery and radiation like a champ. Even my doctors were worried about the fact that I was “taking it so well”. Later though, when the storm had past, I expected nothing but rainbows to follow. The “worse part of the journey” was over right? Not exactly. Instead of rainbows, a tornado swiped through unexpectedly destroying the very foundation I had been standing on for so long. It was as though every emotion I had suppressed had come bursting out of a secret box buried deep within. I began to ask myself, “Am I really a survivor?” To me the word “survivor” meant it was all over and life would be what it once was. Why wasn’t that happening?

I knew I couldn’t be the only one feeling this way so I decided to write about it. It’s about the only part of my journey that really makes sense to me at the moment. I’ve realized that the life I once lived can no longer exist exactly as it was. No matter how much I try to even think the way I once did, it’s impossible. It’s like buying a delicious ice cream cone with all of your favorite toppings and watching it hit the floor just before you start eating it. You can’t just put it back on the cone and eat it without thinking about the “slow motion” fall you just witnessed. Instead, you learn to appreciate whats left of it and go on your merry way.

Learning to cope with the side effects of my surgery and medications, while remembering how lucky I am to be typing away at my laptop sharing my random thoughts with the world, is my version of “learning to appreciate what is left of it and going on your merry way”. I too am guilty of finding it hard to see the silver lining at times but I promise you, it’s there. It’s just difficult to see when our emotions get the best of us. Just take a moment and remind yourself of your many accomplishments. You will slowly start to realize that there is no way you could accomplish so much and be the same person. In time you will find you are far more amazing, courageous and beautiful…

Stay tuned,
Elizabeth 🙂

2 weeks completed, now it’s time for another amazing vacation ;) …

It was only about 2 weeks ago, that I was blogging about how my first week at my new job going. Since then, so much has occurred. My first 2 weeks at the gynecology office had gone really well. My coworkers were great and it felt amazing to be in the workforce again. However, traveling was proving to be a little tougher than I had anticipated it would be. I was finding myself spending anywhere from 2-3 hours of my day, driving to and from work. I didn’t think it would be such an issue considering I had traveled long distances before for work, but it was really starting to wear me down. Luckily, I had planned a vacation prior to starting my new job and it would serve as a good break for me to recuperate.

It was August 16th, when we hopped on a plan heading to San Francisco, California. I was super excited to embark on another new journey. This time I was doing a spiritual retreat in Mount Shasta. I honestly didn’t think much of it at first. I just knew we would be hiking, meditating, and doing some yoga. That alone was a great vacation in my book.

Our flight from Ft Lauderdale, Florida to San Francisco, California was 6 hours long, and Mount Shasta was a good 5 hours away from San Francisco.

And we've arrived to San Francisco!! :D
And we’ve arrived to San Francisco!! 😀
Time to hit the road and make our way to Mt Shasta :)
Time to hit the road and make our way to Mt Shasta 🙂

For the record, I would recommend arriving in Sacramento or Redding, California instead. It will easily cut the drive time in half. If you don’t have that option, plan to stay the night in San Francisco and drive up the next morning. You’ll be happy you did.

Upon arriving at the lovely Mt Shasta Bed & Breakfast, we checked in, I placed my bags on the room floor and passed out like a baby after a heavy meal.

The next day, I showered up and made my way to the dining room where breakfast was served daily to all of the house guests. There, we slowly began to meet some of the individuals that were also partaking in the spiritual retreat. They were all very sweet and pleasant to talk with. Each with a unique background and wealth of information. As much as I enjoy being a social butterfly and talking to others, I found myself happily listening to each conversation, eager to learn more about the people I would be spending the next 7 days with.

Later that morning, we explored the town a bit and decided to rent some mountain bikes. The sun was out and there was a cool breeze in the air. With the view of the beautiful mountains surrounding us, it was hard to deny myself the desire to ride again. We mounted our bikes and cruised through the city and eventually made our way to lake siskiyou. It was so beautiful to see a big lake surrounded by such a majestic mountain. When I took a closer look, I could see the locals swimming and canoeing, while others played fetch with theirs dogs. In that moment, I began to feel grounded again. The fast pace of the city was drowned out by the nature all around me. I could have stayed there all day, only we had to return the bikes to the store and make our way back to the bed & breakfast for our first group meeting.

Lake Siskiyou :)
Lake Siskiyou 🙂
Me+My bike+lake siskiyou= awesomeness!!! :D
Me+My bike+lake siskiyou= awesomeness!!! 😀

Andrew, our group leader, and his partner in crime Lauren, welcomed us and gathered us into a circle. One by one, we were asked to introduce ourselves and express to the group why we were there. In other words, what did we expect to get from the retreat. I was honestly looking forward to some time off. However, when it was my turn to speak, the most natural explanation to leave my mouth was, “Since being diagnosed with breast cancer, I’ve wanted to stress less about the little things in life and focus more on living my life and my true purpose”. I can’t recall if I worded it just so, but it’s pretty close to what I remember saying. I don’t even know where the words came from. I hadn’t met any of these people before, and here I was, sharing such a personal experience without flinching a muscle. I have blogged about it, yes, but never have I spoken to such a large group of people about it. In that moment I knew that this “vacation” was going to provide me with more than just time to meditate, hike, and do yoga. I was going to continue my growth in a way I had been longing to for some time and I look forward to sharing my experience with you all…

Stay tuned,
Elizabeth 🙂

Machu Picchu…

The next morning I woke up with so much built up excitement. I had heard so many stories about the different energy levels found on the mountain, and I wanted to experience it all. I wanted to feel that euphoria people claimed they felt while visiting.

As I handed over my ticket and passport, I felt goose bumps traveling up my spine. “This is it! We are on Machu Picchu!” We were traveling as a group, but I remember leaving them behind a few times. It wasn’t intentional. I could just feel the mountain calling out to me, guiding me through its paths. It was almost as if I had been there before.

It almost fits in my hand...lol j/k :)
It almost fits in my hand…lol j/k 🙂

When we reached the top however, my feet were planted right to the ground. I could have spent hours gazing into the distance. I didn’t feel the change in energy everyone had talked about, what I felt, however, was absolute freedom. Maybe that’s what people were trying to explain? Till this day, just thinking about the feeling I had that day, brings happy tears to my eyes.

Enjoying the spectacular view :)
Enjoying the spectacular view 🙂

It made me thankful that I was able to survive my journey and have this experience. Thankful to hear each sound as it was, not as someone heard it, and to see and feel everything with my own eyes and hands, versus seeing it through the lens of someone’s camera and imagining what it would feel like.

Stay tuned,
Elizabeth 🙂

Wanting what we can’t have…

I spent a lot of time within the next several days thinking about everything I had discussed with my doctors. I thought I would be able to start my treatments right away and that soon enough I’d be on my way to a new city but, that wasn’t the case at all. I still needed to have more tests done and, I was also scheduled to consult another physician for a second opinion. This wasn’t going to be the fast, black and white process I wanted it to be. Actually, I was pretty naive in thinking it would, but hey, a girl can dream can’t she?

While processing my thoughts, one topic in particular did continue to cross my mind, no matter how hard I tried to let it go. Thinking about it made me laugh because it was a perfect example of how we as human beings have a tendency to want the things we can’t always have. Why is that? Why do we say we don’t want something but quickly change our minds when we are told we can’t have it anyway? If you haven’t guess it already, the topic I was referring to was the possibility of not having my own children.

Sure, at one time in my life I wanted to but, as I got older, it really didn’t matter if I had my own or chose to adopt. In fact, I had always wanted to adopt, even if I did have my own. There is nothing more gratifying to me then knowing I could provide a great home to a child that needs one but, for some reason, it was indeed starting to bother me.

It wasn’t that my opinion about adoption had changed. It was more the fact that I liked knowing I didn’t give birth to my own children because it was my decision and not because I just couldn’t. Again, I felt as though I had lost control over something that was my choice to make.

Each time I talked about it, I became more frustrated. Cancer, and the preventative treatments that followed it, had taken over my life again. To make things more difficult, the universe was reminding me of children every moment it could. Everywhere I went, couples were either getting ready to have a baby or just did. Even worse, was listening to people complain about having them at all. I mean, I’m not a parent but. I can imagine that having children has it’s challenges. It’s a huge responsibility and I give lots a credit to the many mom and dad’s I know that make it look so easy. Still, it upset me to see how some people took it for granted. They were so bitter and viewed it as more of a burden then a gift, not even stopping to consider what it would be like if they couldn’t have them at all.

I tried hard not to be judgmental but at times it proved to be very difficult. I just wanted so badly to help them see the beauty in what they had. I suffered with this for some time until I woke up one day and once again stopped feeling bad for myself. “That’s it!”, I thought, “I had already decided to adopt if I still wanted to have children one day so, in your face cancer!” Besides, who was I to assume people didn’t actually view their children as a gift. Perhaps they too were having a moment of weakness.

Then just like that, instead of taking ten steps backwards, I was taking a giant leap forward. There was absolutely no reason for me to feel bad because I wasn’t being forced to take an alternative route. I had made that choice long before cancer affected my life. It was time to break free from these emotional chains and continue to move forward. I had big dreams and I wasn’t about to let anything get in the way of my accomplishing them…

Stay tuned,

Elizabeth 🙂

 

 

The second addition to ” My Oncology Team”…

Today I was scheduled to meet with the radiation oncologist. This time, since it was so close to work, I booked the appointment late in the afternoon. When I walked in, the office was very quiet and there were two very cheerful young ladies sitting behind the front desk. After signing in, I was given a stack of forms to complete. “There goes another tree with my name on it”, I thought to myself. I quickly filled them out and returned them to one of the girls behind the desk.

I don’t recall waiting very long before the nurse called my name and lead me into an exam room. This office was very different from the last. There were no windows in the exam room I was in and it was lightly decorated. It didn’t feel as cozy or welcoming but, I later found out that it was due to them relocating to a much nicer facility. In any event, I wasn’t aware of that at the time so I became a little nervous, not knowing what to expect. Was the lack of decor suppose to resemble my new doctors personality? I knew she was a female based on the name but I hadn’t heard anything more about her. Was she going to be cold and dry? Well, I was about to find out.

As my brain was trying to connect the pieces of the puzzle, I heard a gentle knock on the door and in came the doctor with a huge smile on her face. She instantly lit up the room and gave it the makeover it needed. She introduced herself and with just a few words I felt an instant connection. I could sense that she was a very kind and compassionate person.

After a little game of “let’s get to know each other” she asked me to change into a gown so that she could take a look at my incision. I was still healing well which was great news because I was ready to start treatment as soon as I was cleared to do so. I wanted to make sure that there wasn’t even one cell that could do me harm left behind.

She explained I needed to give my wound a little more time to heal and since I was also going to Moffitt for a second opinion, she recommended I wait to see what form of treatment they suggested before going any further. If chemotherapy was needed, I would have to wait till I finished the chemo before I could move forward with radiation.

She also wanted me to schedule an appointment to see a genetics counselor so that they could test me for the BRCA 1 and BRCA 2 gene. The fact that I was so young and with no known family history of breast cancer was starting to raise suspicion. If indeed I was positive for either gene, I wanted to do anything I could to prevent someone else in my family from going through the same thing I was. I had a younger sister and two nieces to think about. With a positive gene, the recommendation is to have a double mastectomy and hysterectomy as your risk of breast and cervical cancer are much higher. This was important information to pass on and it would be selfish of me to keep it to myself.

My doctor asked me how I felt about the possibility of not having my own children, should that be the case in the future, and I remember thinking, “with all of the kids in the world that need a good home, why on earth would I want to risk passing on a faulty gene to my offspring”? I had always been happy with the idea of adoption. In fact on a more recent note, prior to my diagnoses, I had decided that it was the best option because I didn’t want to be pressed for time by my “biological clock”. It was hard enough with society wondering why at 31 I wasn’t already married with children.

The truth is, I wanted to experience life more without the responsibility of having a child. I didn’t want to conform to societies belief that at my age I should already have children when I knew I wasn’t ready to give up certain freedoms that came with not having them. Who made up that silly rule anyway and when did it become so taboo to decide not to have children? I don’t think my doctor was to convinced but, she listen to my reasoning, gave me a smile and reassured me I was going to get through this. I was very happy to have her on my team.

Once I left the office I immediately called the genetics counselor to schedule my appointment. I would soon be on my way to Moffitt and I wanted to get as much as I could done before arriving. Little by little I was checking off items on my to do list and slowly I was able to see the light at the end of the tunnel…

Stay tuned,
Elizabeth 🙂