Recognizing those who have inspired us…

Has someone made a significant difference in your life? Provided you with the confidence to let your true colors shine brightly so that you could share your gift with the world? If you answered yes to either of these questions, this message is for you. I’d like to feature someone special each Monday on the “Gift With a Pink Ribbon” Facebook page and thank them for helping you become the incredibly awesome individual you are today!!

To participate all you have to do is visit http://www.facebook.com/giftwithapinkribbon, “like” my page, and inbox me a picture of that special someone along with a brief description of how they’ve inspired you. This can be a family member, your friend, your boss, your pet, anyone! We are all unique and inspired in different ways. Looking forward to hearing from you all!!

Stay tuned,
Elizabeth

My trip to Moffitt…

Today I’m hitting the rewind button and bringing you back to December 18th, the day I was scheduled to meet the Oncologist at Moffitt Cancer Centers in Tampa. I remember getting ready that morning and frantically trying to find the perfect outfit. I was looking for something cheery but still professional. It was important to me that I present myself as the knowledgeable and confident person I was. If you take yourself seriously, so will others and my health was definitely something to be taken seriously.

I finally put something together, packed up my medical records and off we went. It took us several hours to get there and during that time my nerves really started kicking in. What if I do need chemo? Not only was this going to take a toll on me physically, it was also going to postpone my plans to move. I again became frustrated with my current situation. I was so ready to take the leap and start a new life. Why was it all being placed on hold?

My thoughts were interrupted by the view outside the passenger window, we had finally arrived. “Wow, look at this place. It’s beautiful!” I felt as though I had arrived at a retreat, not a cancer facility. It was huge and the landscaping was beautifully done. We left the car with the valet and made our way into the buildings.

The nervousness I had felt in the car was slowly beginning to fade. I was in complete awe walking down the halls and through the lobbies as my eyes glanced at all of the beautiful pictures on the walls and the gorgeous scenery visible through the large glass windows. There were so many cozy sitting areas and cafés to relax in. It was in no way what I had imagined it to be. In fact, what I’m about to say may surprise you. I felt as if I belonged to this special and exclusive club. My soul was being nourished by so many loving and compassionate individuals who were there dedicating many hours of their lives to make mine better. I felt inspired and needless to say I was very emotional.

We finally reached the check in desk of the breast cancer wing. I remember feeling like I was checking into a day spa. Behind the reception area there was a wall with a large soothing waterfall and off to the side was a table with complimentary beverages. I gave the young woman behind the desk my name and after verifying a small bit of information and placing an ID bracelet on my wrist, she gave me a pager and a reusable Moffitt bag with a folder full of information, a pen and other goodies and showed me into the waiting room area.

My partner and I waited patiently and kept ourselves busy making small talk and looking at funny YouTube videos to keep the mood light. My name was called a few different times before they brought us back into the exam room. Once for insurance verification and important documents I needed to fill out and the other to get my vitals. It was a slow process but eventually moved faster once we were in the back. We met first with a physician doing her internship at Moffitt. Then we met with a counselor who provided us with information on programs available to cancer patients. I was on information overload by the time the doctor came in to give us his opinion.

Prior to my visit at Moffitt I had met with the genetics counselor and received the results of my BRCA 1 & BRCA 2 testing. Thankfully, after only a few weeks of waiting, the results were in and they came up negative. This was great news because it meant I wasn’t going to have to go in for a second surgery.

The doctor reviewed all of my records and expressed he was in agreement with my oncologist back home. There was no need for me to have chemotherapy. I would only have to undergo radiation and later be treated with hormone blockers. The doctor questioned my desire to have children as he stressed the importance of my being aware of the inability to have children during the 5 years I’d be on the hormone blocker, as well as the possibility of it decreasing my chances of being able to conceive a child in the future. It had been an emotional topic for me recently but, I reassured him that I had thought about it and was okay with the possible outcome. He also suggested going for further genetic counseling but left that part up to me. It wasn’t necessary but, I qualified to participate in a research study they were doing so he wanted to make me aware of it.

Then came the answer to a question I had been asking my physicians but wasn’t able to get a straight response to, “what stage was my cancer”? He told me I could safely call it “stage 0” cancer. Really?! I felt on top of the world, blessed, lucky and proud of myself for having caught the cancer long before it had grown into something far more severe. I was excited now knowing I could meet with my oncologist back home and officially start preparing my treatment plan. It was a very long and exhausting day but so worth it after the great news I had just received…

Stay tuned,
Elizabeth 🙂

The second addition to ” My Oncology Team”…

Today I was scheduled to meet with the radiation oncologist. This time, since it was so close to work, I booked the appointment late in the afternoon. When I walked in, the office was very quiet and there were two very cheerful young ladies sitting behind the front desk. After signing in, I was given a stack of forms to complete. “There goes another tree with my name on it”, I thought to myself. I quickly filled them out and returned them to one of the girls behind the desk.

I don’t recall waiting very long before the nurse called my name and lead me into an exam room. This office was very different from the last. There were no windows in the exam room I was in and it was lightly decorated. It didn’t feel as cozy or welcoming but, I later found out that it was due to them relocating to a much nicer facility. In any event, I wasn’t aware of that at the time so I became a little nervous, not knowing what to expect. Was the lack of decor suppose to resemble my new doctors personality? I knew she was a female based on the name but I hadn’t heard anything more about her. Was she going to be cold and dry? Well, I was about to find out.

As my brain was trying to connect the pieces of the puzzle, I heard a gentle knock on the door and in came the doctor with a huge smile on her face. She instantly lit up the room and gave it the makeover it needed. She introduced herself and with just a few words I felt an instant connection. I could sense that she was a very kind and compassionate person.

After a little game of “let’s get to know each other” she asked me to change into a gown so that she could take a look at my incision. I was still healing well which was great news because I was ready to start treatment as soon as I was cleared to do so. I wanted to make sure that there wasn’t even one cell that could do me harm left behind.

She explained I needed to give my wound a little more time to heal and since I was also going to Moffitt for a second opinion, she recommended I wait to see what form of treatment they suggested before going any further. If chemotherapy was needed, I would have to wait till I finished the chemo before I could move forward with radiation.

She also wanted me to schedule an appointment to see a genetics counselor so that they could test me for the BRCA 1 and BRCA 2 gene. The fact that I was so young and with no known family history of breast cancer was starting to raise suspicion. If indeed I was positive for either gene, I wanted to do anything I could to prevent someone else in my family from going through the same thing I was. I had a younger sister and two nieces to think about. With a positive gene, the recommendation is to have a double mastectomy and hysterectomy as your risk of breast and cervical cancer are much higher. This was important information to pass on and it would be selfish of me to keep it to myself.

My doctor asked me how I felt about the possibility of not having my own children, should that be the case in the future, and I remember thinking, “with all of the kids in the world that need a good home, why on earth would I want to risk passing on a faulty gene to my offspring”? I had always been happy with the idea of adoption. In fact on a more recent note, prior to my diagnoses, I had decided that it was the best option because I didn’t want to be pressed for time by my “biological clock”. It was hard enough with society wondering why at 31 I wasn’t already married with children.

The truth is, I wanted to experience life more without the responsibility of having a child. I didn’t want to conform to societies belief that at my age I should already have children when I knew I wasn’t ready to give up certain freedoms that came with not having them. Who made up that silly rule anyway and when did it become so taboo to decide not to have children? I don’t think my doctor was to convinced but, she listen to my reasoning, gave me a smile and reassured me I was going to get through this. I was very happy to have her on my team.

Once I left the office I immediately called the genetics counselor to schedule my appointment. I would soon be on my way to Moffitt and I wanted to get as much as I could done before arriving. Little by little I was checking off items on my to do list and slowly I was able to see the light at the end of the tunnel…

Stay tuned,
Elizabeth 🙂